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Author

Stacy L. Pike-Langenfeld

Observed names: Stacy Pike-Langenfeld, Stacy Pike‐Langenfeld
Observed institution: Legacy of Angels Foundation
OpenAlex ID: A5030453484
Making Decisions About Krabbe Disease Newborn Screening
2022 · Joanne Kurtzberg, Dietrich Matern, et al. · PEDIATRICS · 4
Why must the debate continue on Krabbe disease newborn screening?
2022 · Stacy Pike‐Langenfeld · American Journal of Medical Genetics Part C Seminars in Medical Genetics · 3
Caregiver-reported disease burden in Krabbe disease: evaluating outcomes of hematopoietic stem cell transplantation
2026 · Nicholas Alexander Bascou, Skyler Jackson, et al. · Orphanet Journal of Rare Diseases · 1
Correction: Caregiver-reported disease burden in Krabbe disease: evaluating outcomes of hematopoietic stem cell transplantation
2026 · Nicholas Alexander Bascou, Skyler Jackson, et al. · Orphanet Journal of Rare Diseases
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Late-infantile Krabbe disease: Something worth screening for!
2026 · Amy White, NIcholas Bascou, et al. · Molecular Genetics and Metabolism
Parent-reported disease burden in Krabbe disease: Evaluating outcomes of hematopoietic stem cell transplant
2025 · Nicholas A. Bascou, Patti A. Engel, et al. · Molecular Genetics and Metabolism
KrabbeConnect patient journey map
2021 · Anne Rugari, Carol Ogg, et al. · Molecular Genetics and Metabolism
Disease burden and treatment considerations in Krabbe disease: The caregiver perspective
2020 · Stacy L. Pike-Langenfeld, Dawn Laney, et al. · Molecular Genetics and Metabolism
Works count: 8
Citation count: 8
H-index: 2
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