Author

Michaela Winkelmann

Institution: Galen Research (United Kingdom)

Observed institutions: Beth Israel Deaconess Medical Center, CHDI Foundation, Huntington's Disease Society of America, Huntington's Disease Association, Galen Research (United Kingdom)

ORCID: 0009-0008-5486-0598

Observed ORCID: 0009-0008-5486-0598

OpenAlex ID: A5036965783

Economic burden of Huntington disease in Europe and the USA: Results from the Huntington's Disease Burden of Illness study

2022 · Idaira Rodríguez‐Santana, Tiago Mestre, et al. · European Journal of Neurology · 32

Perceptions about Research Participation among Individuals at Risk and Individuals with Premanifest Huntington’s Disease: A Survey Conducted by the European Huntington Association

2021 · Filipa Júlio, Ruth Blanco, et al. · Journal of Personalized Medicine · 7

Humanistic Burden of Huntington Disease: Evidence From the Huntington Disease Burden of Illness Study

2022 · Idaira Rodriguez Santana, Samuel Frank, et al. · Neurology Clinical Practice · 5

Development and validation of the first needs-based quality of life measure for individuals with manifest Huntington’s disease

2026 · Isobel Spray, Mariusz T. Grzeda, et al. · Journal of Neurology · 1

Suicidal Ideation and Sleep Disturbances Among People With Huntington Disease: Evidence From the HDBOI Study

2025 · Idaira Rodríguez Santana, Samuel A. Frank, et al. · Neurology Clinical Practice · 1

F64 Suicidal ideation and sleep disturbances by disease stage: evidence from the Huntington’s disease burden of illness (HDBOI) study for europe (EU5)

2022 · Idaira Rodriguez-Santana, Rosa Willock, et al. · Journal of Neurology Neurosurgery & Psychiatry · 1

F08 Huntington’s disease burden of illness (HDBOI): study methodology, sample representativeness and fieldwork risk mitigation strategy during the COVID-19 pandemic

2021 · Idaira Rodríguez, Samuel Frank, et al. · Journal of Neurology Neurosurgery & Psychiatry · 1

F07 Demographic characteristics and health resource use of the european participants from the huntington’s disease burden of illness study (HDBOI)

2021 · Rosa Willock, Samuel Frank, et al. · Journal of Neurology Neurosurgery & Psychiatry

F12 Research participation: the view of persons at risk and persons with premanifest huntington’s disease

2021 · Filipa Júlio, Ruth Blanco, et al. · Journal of Neurology Neurosurgery & Psychiatry

H05 A joint initiative for improved care of huntington’s disease patients in Germany

2021 · Michaela Winkelmann, Jochen Maier, et al. · Journal of Neurology Neurosurgery & Psychiatry

Works count: 10

Citation count: 48

H-index: 3

I10-index: 1