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Alice Houk
Institution:
Aplastic Anemia and MDS International Foundation
Observed institution:
Aplastic Anemia and MDS International Foundation
ORCID:
0000-0002-2871-2857
Observed ORCID:
0000-0002-2871-2857
OpenAlex ID:
A5043504614
Partnering in medical education: rare disease organizations bring experts and a patient voice to the conversation
2014
·
Stephanie Chisolm
, Ellen Salkeld
, et al.
·
Expert Opinion on Orphan Drugs
·
7
PDF
The Mental Health Burden and Quality of Life Impact of Myelodysplastic Syndromes in Patients and Their Caregivers
2022
·
Katherine W DiNardo
, Alice Houk
, et al.
·
Blood
·
6
Patient and physician perceptions about blood transfusions in the myelodysplastic syndromes
2020
·
David King
, Rodney Schmidt
, et al.
·
Leukemia Research
·
4
An Examination of Educational Gaps in the Diagnosis and Treatment of Myelodysplastic Syndromes
2011
·
Jamile M. Shammo
, James M. Foran
, et al.
·
Cancer Control
·
3
Doctor-Patient Communication and Perception of Treatment Discontinuation in Myelodysplastic Syndromes (MDS) Diverge at the Time of Disease Progression
2014
·
Aaron T. Gerds
, Betsy Dennison
, et al.
·
Blood
·
2
Development of a disease-specific measure of quality of life in myelodysplastic syndromes (MDS): The “QUALMS-1”.
2012
·
Gregory Alan Abel
, Stephanie Lee
, et al.
·
Journal of Clinical Oncology
·
2
Clinical Decision-Making in Hematopoietic Cell Transplantation (HCT) for Severe Aplastic Anemia (SAA): Insights from a National Survey of Physicians
2026
·
Azra Borogovac
, Yvonne Efebera
, et al.
·
Transplantation and Cellular Therapy
The global PNH patient registry: real-world data on PNH symptom burden and quality of life
2025
·
David Araten
, Austin Kulasekararaj
, et al.
·
Blood
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry: Highlights of the Data from the First Three Years
2024
·
David Araten
, Austin G. Kulasekararaj
, et al.
·
Blood
Differing Perceptions between Myelodysplastic Syndrome (MDS) Patients and Providers Regarding Blood Transfusions
2019
·
David J. King
, Martina C. Murphy
, et al.
·
Blood
Knowledge That the Myelodysplastic Syndromes (MDS) Are a Type of Cancer Does Not Influence Patient Perception of Treatment Discontinuation
2014
·
Aaron T. Gerds
, Betsy Dennison
, et al.
·
Blood
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Works count:
11
Citation count:
24
H-index:
3
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