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Kerry Sandilands

Observed names: K. Sandilands, Sandilands, K., Sandilands, Kerry
ORCID: 0009-0001-6966-2251
Observed ORCID: 0009-0001-6966-2251
OpenAlex ID: A5048526846
Carer burden in rare inherited diseases: a literature review and conceptual model
2022 · Kerry Sandilands, Angela Williams, et al. · Orphanet Journal of Rare Diseases · 65
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Health‐related quality of life in cutaneous T‐cell lymphoma: A post hoc analysis of a phase 3 trial in mycosis fungoides and Sézary syndrome
2024 · P. L. Ortiz Romero, Y. H. Kim, et al. · Journal of the European Academy of Dermatology and Venereology · 6
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Health-related quality of life in French pediatric patients with X-linked hypophosphatemia: real-world data from the International XLH Registry
2025 · Agnès Linglart, Cyril Amouroux, et al. · JBMR Plus · 5
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Real-world impact of treatment on growth in children with X-linked hypophosphatemia
2026 · Seiji Fukumoto, Dieter Haffner, et al. · The Journal of Clinical Endocrinology & Metabolism · 1
The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis
2026 · Vrinda Saraff, Pedro Arango Sancho, et al. · PLoS ONE · 1
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Delayed diagnosis of X-linked hypophosphatemia in the absence of family history: a global unmet need
2025 · Suma Uday, M Zulf Mughal, et al. · JBMR Plus · 1
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Advancing Patient Evidence in XLH (APEX): Baseline analysis of a global data unification program
2025 · Thomas O. Carpenter, Seiji Fukumoto, et al. · Bone · 1
A-201 Patient-reported symptoms and HRQL of MF and SS patients receiving mogamulizumab over 24 weeks: interim results from the PROSPER study
2024 · J. Scarisbrick, A. Arumainathan, et al. · European Journal of Cancer · 1
Patient and care partner burden in cutaneous T-cell lymphoma using disease-specific measures of symptoms and health-related quality of life
2026 · Julia J Scarisbrick, Larisa Geskin, et al. · British Journal of Dermatology
Real-world outcomes in patients with tumor-induced osteomalacia treated vs not treated with burosumab
2026 · María Belén Zanchetta, Kathryn M Dahir, et al. · Journal of the Endocrine Society
APEX Pediatric Growth Regional Study Investigator List
2026 · Fukumoto, Seiji, Haffner, Dieter, et al. · Mendeley Data
Health-related quality of life in French adults with X-linked hypophosphatemia: real-world data from the International XLH Registry
2026 · Karine Briot, Sandrine Lemoine, et al. · JBMR Plus
Adolescents’ experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth
2026 · Vrinda Saraff, Pedro Arango-Sancho, et al. · Orphanet Journal of Rare Diseases
Supplementary Materials
2026 · Maria Belén Zanchetta, Kathryn Dahir, et al. · Figshare
Adolescents’ experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth
2026 · Saraff, Vrinda, Arango-Sancho, Pedro, et al. · Figshare
Additional file 1 of Adolescents’ experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth
2026 · Saraff, Vrinda, Arango-Sancho, Pedro, et al. · Figshare
Symptom burden and health-related quality of life in patients with Mycosis Fungoides and Sezary Syndrome: findings from the International PROSPER study
2025 · Julia Scarisbrick, Larisa Geskin, et al. · European Journal of Cancer
Health-Related Quality of Life (HRQL) in Cutaneous T-Cell Lymphoma: A Post Hoc Analysis Examining Disease Burden and Patient Characteristics from the Phase 3 Mavoric Trial in Mycosis Fungoides and Sézary Syndrome
2023 · Michi M Shinohara, Youn H. Kim, et al. · Blood
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Health-related quality of life (HRQL) in cutaneous T-cell lymphoma: burden of disease and patient characteristics from a post-hoc analysis of a phase 3 trial in mycosis fungoides and Sézary syndrome
2023 · Pablo Romero, Annabel Nixon, et al. · European Journal of Cancer
PCR223 Real-World Observational Study of Mogamulizumab in Adult Patients with Mycosis Fungoides and Sézary Syndrome (PROSPER)
2023 · A. Williams, Y. Zhao, et al. · Value in Health
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Works count: 21
Citation count: 81
H-index: 3
I10-index: 1
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