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Author

Brian Denger

Observed names: B. Denger, B.E. Denger, Denger, Brian
Observed institution: Parent Project Muscular Dystrophy
ORCID: 0000-0001-9172-3092
Observed ORCID: 0000-0001-9172-3092
OpenAlex ID: A5076708757
Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development
2019 · Dmitry Khodyakov, Sean Grant, et al. · Patient · 117
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Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations
2019 · Dmitry Khodyakov, Sean Grant, et al. · Medical Decision Making · 42
Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy
2019 · Brian Denger, Kathi Kinnett, et al. · Orphanet Journal of Rare Diseases · 35
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Report on the Second Endocrine Aspects of Duchenne Muscular Dystrophy Conference December 1–2, 2010, Baltimore, Maryland, USA
2011 · D.G. Leung, E.L. Germain-Lee, et al. · Neuromuscular Disorders · 25
Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol
2017 · Dmitry Khodyakov, Kathi Kinnett, et al. · JMIR Research Protocols · 23
The RAND/PPMD Patient-Centeredness Method: a novel online approach to engaging patients and their representatives in guideline development
2020 · Khodyakov, Dmitry, Denger, Brian, et al. · PubMed · 22
Participant experiences with a new online modified-Delphi approach for engaging patients and caregivers in developing clinical guidelines
2020 · Armstrong, Courtney, P. Grant, Sean, et al. · PubMed · 18
The third international meeting on genetic disorders in the RAS/MAPK pathway: Towards a therapeutic approach
2015 · Bruce Korf, Reza Ahmadian, et al. · American Journal of Medical Genetics Part A · 12
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Developing a Process for Getting Patient and Caregiver Input on Clinical Practice Guidelines
2020 · Dmitry Khodyakov, Kathi Kinnett, et al. · 11
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Gaps in the Assessment and Care of Neurodevelopmental and Psychiatric Conditions Associated With Dystrophinopathy
2024 · Olivia Baldi, Kathi Kinnett, et al. · Muscle & Nerve · 8
A Mixed-Method Study Exploring Patient-Experienced and Caregiver-Reported Benefits and Side Effects of Corticosteroid Use in Duchenne Muscular Dystrophy
2023 · Ryan Fischer, Katherine Porter, et al. · Journal of Neuromuscular Diseases · 6
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Clinician Perspectives of Gene Therapy as a Treatment Option for Duchenne Muscular Dystrophy
2024 · Heidi Cope, Ryan Fischer, et al. · Journal of Neuromuscular Diseases · 4
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Re-evaluating acceptable risk of death from gene therapy: A threshold study among individuals with Duchenne muscular dystrophy and their caregivers in the US and UK
2025 · Holly Peay, Ryan Fischer, et al. · European Journal of Medical Genetics · 2
291PTREAT-NMD neuromuscular network: variations in DMD mutation distribution in the Duchenne muscular dystrophy dataset
2025 · I. Zito, A. Martin, et al. · Neuromuscular Disorders · 1
P235 Best-worst scaling analysis of priorities for participation in gene therapy clinical trials for Duchenne muscular dystrophy
2023 · M. McNiff, E. Heslop, et al. · Neuromuscular Disorders
P21 Risk tolerance of caregivers of individuals with Duchenne muscular dystrophy for gene therapy
2023 · E. Camino, E. Heslop, et al. · Neuromuscular Disorders
Works count: 20
Citation count: 326
H-index: 9
I10-index: 9
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