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Jessie Dubief

Observed name: Dubief, Jessie
ORCID: 0000-0001-8846-6240
Observed ORCID: 0000-0001-8846-6240
OpenAlex ID: A5093685896
Time to diagnosis and determinants of diagnostic delays of people living with a rare disease: results of a Rare Barometer retrospective patient survey
2024 · Fatoumata Faye, Claudia Crocione, et al. · European Journal of Human Genetics · 196
Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
2026 · Sylvia Martin, Gergana Kyosovska-Peshtenska, et al. · Orphanet Journal of Rare Diseases · 7
The impact of living with a rare disease: barriers and enablers of independent living and social participation. A Rare Barometer survey
2025 · EURORDIS, Fatoumata FAYE, et al. · 4
Rare disease patients’ opinion on the future of rare diseases
2021 · Jessie Dubief, Anna Kole, et al. · 4
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Voices on newborn screening: the opinion of people living with a rare disease
2024 · EURORDIS - Rare Diseases Europe, Jessie Dubief, et al. · 2
Setting Standards of Care Quality!
2020 · EURORDIS - Rare Diseases Europe, Jessie Dubief · 1
"Moncey, un quartier complexe", Bulletin du SEL (Sauvegarde et embellissement de Lyon), n° 101, pages 6-11
2012 · Jessie Dubief · HAL · 1
Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review
2026 · Rita Francisco, Michel Wensing, et al. · Orphanet Journal of Rare Diseases
PDF
Additional file 2 of Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review
2026 · Rita Francisco, Michel Wensing, et al. · Figshare
Additional file 4 of Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review
2026 · Rita Francisco, Michel Wensing, et al. · Figshare
Additional file 3 of Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review
2026 · Rita Francisco, Michel Wensing, et al. · Figshare
Additional file 1 of Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review
2026 · Rita Francisco, Michel Wensing, et al. · Figshare
Patient-reported experiences of people living with a rare disease with secondary and tertiary care: a scoping review
2026 · Rita Francisco, Michel Wensing, et al. · Figshare
Living well: The Mental Health of People Living with a Rare or Undiagnosed Condition and their Family Members. A Rare Barometer Survey.
2026 · Jessie Dubief, Fatoumata Faye, et al.
Improve our mental health! Key findings from a Rare Barometer survey on the mental health of people with rare diseases
2026 · Jessie Dubief, Fatoumata Faye
Additional file 4 of Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
2026 · Martin, Sylvia, Kyosovska-Peshtenska, Gergana, et al. · Figshare
Additional file 5 of Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
2026 · Martin, Sylvia, Kyosovska-Peshtenska, Gergana, et al. · Figshare
Additional file 2 of Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
2026 · Martin, Sylvia, Kyosovska-Peshtenska, Gergana, et al. · Figshare
Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
2026 · Martin, Sylvia, Kyosovska-Peshtenska, Gergana, et al. · Figshare
Additional file 3 of Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
2026 · Martin, Sylvia, Kyosovska-Peshtenska, Gergana, et al. · Figshare
Additional file 1 of Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022
2026 · Martin, Sylvia, Kyosovska-Peshtenska, Gergana, et al. · Figshare
Enquête : modes de vie des travailleurs détachés dans la région de Saint-Nazaire: Rapport pour l’agence d’urbanisme de la région de Saint-Nazaire (addrn), étude qualitative et quantitative
2018 · Hascoët, Yannick, Dubief, Jessie · HAL AMU
Du métier de sociologue, les archives de L’œil à la page
2016 · Pascal Vallet, Jessie Dubief · HAL
Des usages de la créativité dans les quartiers gentrifiés.
2015 · Jessie Dubief
Roots and wings: activists and their relationship to the past in a context of urban renewal
2014 · Jessie Dubief · HAL
Works count: 37
Citation count: 215
H-index: 4
I10-index: 1
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