Product
Help
Pricing
About
Jobs
Log in
Get started
Institution
Add to collection
Fundación Síndrome de Dravet
Homepage:
dravetfoundation.eu
Alternate names:
DSF Spain,
Dravet Syndrome Foundation Spain
Related institution:
Dravet Syndrome Foundation
ROR:
03hgf2c53
OpenAlex ID:
I4405255886
Works
27
Awards
2
Guidance on Dravet syndrome from infant to adult care: Road map for treatment planning in Europe
2021
·
Elena Cardenal‐Muñoz
, Stéphane Auvin
, et al.
·
Epilepsia Open
·
98
PDF
The European patient with Dravet syndrome: Results from a parent-reported survey on antiepileptic drug use in the European population with Dravet syndrome
2015
·
Luis Miguel Aras
, Julián Isla
, et al.
·
Epilepsy & Behavior
·
79
PDF
Impact of the COVID‐19 lockdown on patients and families with Dravet syndrome
2021
·
Isabella Brambilla
, José Ángel Aibar
, et al.
·
Epilepsia Open
·
30
PDF
Dravet syndrome: From neurodevelopmental to neurodegenerative disease?
2025
·
Arunan Selvarajah
, Andrea Sabo
, et al.
·
Epilepsia
·
22
The contribution of fenfluramine to the treatment of Dravet syndrome in Spain through Multi-Criteria Decision Analysis
2022
·
Antonio Gil-Nagel
, Mercè Falip
, et al.
·
Epilepsy & Behavior
·
19
Heat-induced seizures, premature mortality, and hyperactivity in a novel Scn1a nonsense model for Dravet syndrome
2023
·
Anat Mavashov
, Marina Brusel
, et al.
·
Frontiers in Cellular Neuroscience
·
17
PDF
Análisis del impacto familiar y necesidades del síndrome de Dravet en España
2020
·
Ángel Aledo Serrano
, Ana Mingorance
·
Revista de Neurología
·
17
Analysis of endocannabinoid signaling elements and related proteins in lymphocytes of patients with Dravet syndrome
2016
·
Marta Rubio
, Sara Valdeolivas
, et al.
·
Pharmacology Research & Perspectives
·
17
PDF
A tool for Dravet syndrome-associated neuropsychiatric comorbidities evaluation (DANCE)
2024
·
Simona Giorgi
, Stéphane Auvin
, et al.
·
Epilepsy & Behavior
·
15
PDF
Non-pharmacological therapeutic needs in people with Dravet syndrome
2023
·
Carla Ballesteros-Sayas
, Alicia Muñoz-Montero
, et al.
·
Epilepsy & Behavior
·
12
PDF
The social and emotional burden of Dravet syndrome on Spanish caregivers
2024
·
Naiara Sánchez Marco
, Simona Giorgi
, et al.
·
Heliyon
·
9
The Charlotte Project: Recommendations for patient-reported outcomes and clinical parameters in Dravet syndrome through a qualitative and Delphi consensus study
2022
·
Ángel Aledo-Serrano
, Ana Mingorance
, et al.
·
Frontiers in Neurology
·
9
Síndrome de Dravet
2014
·
M.ª Mercedes Mingarro Castillo
, Javier Carmona de la Morena
, et al.
·
Revista Clínica de Medicina de Familia
·
6
PDF
Navigating Dravet syndrome in Spain: A cross‐sectional study of diagnosis, management, and care coordination
2024
·
Sandra Solaz
, Elena Cardenal‐Muñoz
, et al.
·
Epilepsia Open
·
3
Impacto de la COVID-19 en pacientes españoles con síndrome de Dravet y sus cuidadores: consecuencias del confinamiento
2021
·
Elena Cardenal Muñoz
, Rima Nabbout
, et al.
·
Revista de Neurología
·
3
PDF
Methodological challenges in outcomes research for early-trials for implementation of new therapies in neuropediatric rare diseases
2025
·
Maria T. Acosta
, Silvia Zaragoza Domingo
, et al.
·
Orphanet Journal of Rare Diseases
·
2
PDF
Mutación en el gen SCN9A asociado con el síndrome de Dravet: presentación de un caso pediátrico
2022
·
José Miguel Suescún Vargas
, Javier Yesid Pinzon-Salamanca
, et al.
·
Revista Ciencias de la Salud
·
2
PDF
Artificial intelligence‐driven closed‐loop devices in sudden unexpected death in epilepsy prediction and prevention: Insights from persons with epilepsy and caregivers
2025
·
João Ferreira
, Miguel França
, et al.
·
Epilepsia
·
1
PDF
Evidence demands action: An invitation to share the burden of proof
2025
·
Danielle M. Andrade
, Anne T. Berg
, et al.
·
Epilepsia
·
1
PDF
Patient perspectives on European Reference Networks: supporting a flagship initiative through lived experience
2026
·
José Ángel Aibar
·
Orphanet Journal of Rare Diseases
Caregiver perceptions of telemedicine in developmental and epileptic encephalopathies: a nationwide Spanish survey
2026
·
Simona Giorgi
, Sandra Solaz
, et al.
·
Frontiers in Neurology
PDF
Silence around SUDEP and its impact on caregivers of individuals with developmental and epileptic encephalopathies: An international survey
2026
·
José Ángel Aibar
, Ana Cantó Martínez
, et al.
·
Epilepsia Open
PDF
Cocreation of Digital Outcome Measures for Dravet Syndrome: Multistage Co-Design Feasibility Study
2026
·
Navdeep Sahota
, Simona Giorgi
, et al.
·
Journal of Participatory Medicine
Seizures in children with Dravet syndrome in extreme heat: A qualitative study of parental perspectives
2026
·
Angel Aledo‐Serrano
, José Ángel Aibar
, et al.
·
Developmental Medicine & Child Neurology
PDF
Crisis epilépticas en niños con síndrome de Dravet en condiciones de calor extremo: estudio cualitativo de la perspectiva de los progenitores
2026
·
Angel Aledo‐Serrano
, José Ángel Aibar
, et al.
·
Developmental Medicine & Child Neurology
PDF
Show more works
View as search
Works count:
27
Citation count:
868
Year
Topic
Type
