Long-term psychosocial outcomes of children after invasive treatment for congenital heart disease and psychological adjustment of their parents
Year: 2006
Type: dissertation
Study design: Observational Study
Abstract: The objective of the study described in this thesis was to examine a range of long-term \\npsychosocial outcomes of children and adolescents who underwent invasive treatment \\nfor congenital heart disease at a young age. In addition, the psychological adjustment \\nof their parents was assessed. \\n\\nIn chapter 1, the background and the aims of this study were presented. Over the past \\ndecades, advances in diagnostic and surgical techniques and medical treatment of ConHD \\nhave gradually evolved and have significantly improved long-term survival of patients with \\nConHD. Despite improved survival, many patients with ConHD have more or less cardiac \\nsequelae after surgical or interventional treatment. Next to survival, long-term morbidity \\nis of great interest. Morbidity may impair the psychosocial functioning and quality of life \\nof patients with ConHD. Hence, both clinicians and researchers have become more interested in the long-term psychosocial outcomes of patients treated for ConHD. \\n\\nIn the present study, various indicators of psychosocial functioning of children and \\nadolescents with ConHD were measured. A follow-up examination was performed (from \\n2003-2004) among consecutive surviving patients of 4 diagnostic groups, who underwent their first invasive treatment for ConHD at least 7 years and 6 months ago (between \\n1 January 1990 and 1 January 1996) in the Erasmus University Medical Centre Rotterdam, \\nand who were younger than 15 years at the time of the treatment. At follow-up 206 patients were aged 7-28 years. Of this group 35 patients were aged 18-28 years. Results of \\nthe 18-28-year-old patients were not included in this thesis. The present patient sample \\nconsisted of 171 patients, aged 7-17 years, and their parents.
Author: A.W. Spijkerboer
Language: English
Subfield: Cardiology and Cardiovascular Medicine
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W1562536849