Work

The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research

Year: 2012

Type: preprint

Abstract: Highlights the emergence of a "hybrid collective model" of collaboration between patients and experts through a systematic study in the field of rare diseases in France and Portugal, with attention to the reflexive work carried out by patients' organizations on the notion of rareness.

Source: RePEc: Research Papers in Economics

Authors: Vololona Rabeharisoa, Michel Callon, Ângela Marques Filipe, João Arriscado Nunes, Florence Paterson, Frédéric Vergnaud

Institutions: Centre de sociologie de l'innovation, London School of Economics and Political Science, University of Coimbra

Language: English

Topic: Mental Health and Patient Involvement

Subfield: General Health Professions

Field: Health Professions

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

OpenAlex ID: W1564699209

Cites: 37

Cited by: 11

Related to: 10