Work

Improve Privacy in Research by Eliminating Informed Consent? IOM Report Misses the Mark

Year: 2009

Type: article

Abstract: In February 2009, the Institute of Medicine released its report on privacy in health research, Beyond the Privacy Rule: Enhancing Privacy, Improving Health Through Research. The report is based on formal presentations, commissioned and invited surveys and papers, a literature review, and deliberations by the Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule. The Committee was charged with addressing the often-expressed concern of researchers that the Privacy Rule burdens research without adequately protecting the privacy interests of patients and subjects.

Source: Europe PMC (PubMed Central)

DOI: 10.1111/j.1748-720x.2009.00411.x

Author: Mark A. Rothstein

Institution: University of Louisville

Language: English

Topic: Ethics in Clinical Research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

SDG: Peace, justice, and strong institutions

Open Access status: green

Funder: National Institute of Environmental Health Sciences