Year: 2009
Type: other
Abstract: General introduction CHAPTER 1jective well-being was equated to the effect of household income on subjective well-being, both corrected for disease related and socio-demographic variables.with parents of healthy children and what are the costs of differences in well-being expressed in a monetary value? 4 What is the relationship of being a parent of a child with a chronic disease with parental employment and leisure activity time and which factors (disease related and social) are associated with these outcomes in parents of children with a chronic disease? Sample & measuresThis explorative, cross-sectional, retrospective study was conducted among 580 parents of chronically ill children and 443 parents of healthy schoolchildren.The definition of chronic disease includes the following criteria: 1 the disease occurs in children aged 0-18 years, 2 the diagnosis is based on medical scientific knowledge, 3 the disease is not (yet) curable and 4 exists for at least three months, or will probably endure longer, or at least three disease episodes have occurred the last year 88.Parents of children from 10 different chronic diseases were selected: asthma, diabetes, Down syndrome, Duchenne muscular dystrophy, end stage renal disease, metabolic diseases, profound multiple handicaps, sickle cell disease, spina bifida, and survivors of brain tumors.They were either patients of the Emma Children's Hospital or members of a patient organization (Duchenne, metabolic diseases).All children met the criteria of chronic childhood illness.88 Inclusion criteria in all disease groups were: 1 the chronically ill children were aged between 1-19 years old, 2 were diagnosed at least 1 year before start of the study, 3 the children lived at home and 4 parents were able to fill out the questionnaire in either Dutch or English.Specific criteria for each diagnosis are described in Appendix A. Parents of healthy schoolchildren formed the comparison group, they were eligible if:1 their child was not chronically ill, 2 was aged between 1-19 years old and 3 living at home.Also, parents had to be able to fill out the questionnaire in either Dutch or English.A self-report questionnaire was developed for the Care-project.The questionnaire includes several questions adapted from other studies, a validated questionnaire about HRQoL;
Author: Janneke Hatzmann
Language: English
Subfield: Clinical Psychology
Field: Psychology
Domain: Social Sciences
Open Access status: green
OpenAlex ID: W1901485386