Year: 2013
Type: conference-paper
Abstract: Background In the UK, involving patients and the public in health-care service improvement and research is a policy requirement.Yet, showing the eff ects of patient and public involvement (PPI) is complicated by an absence of clarity about what involvement or engagement actually is, or what successful PPI might look like.We examined the case of a UK public health-care improvement initiative (Collaborations for Leadership in Applied Health Research and Care for Northwest London [CLAHRC]) to investigate how PPI was put into practice.We focused on how patient and professional roles developed over time and drew lessons from this about key areas for future assessment of PPI eff ects.Methods We did a 4-year ethnographic study, using participant observation of PPI activities run by CLAHRC (160 h) and in-depth interviews (n=89), 45 with patient participants (ie, patients and service users involved in CLAHRC improvement projects) and 44 with health-care professionals involved in implementing PPI.Activities reported included monthly meetings in which teams of health-care professionals and patient participants met to work on health-care improvement projects, events run by CLAHRC to facilitate learning about quality improvement methods and PPI, and steering groups in which patients participated in organisation of these events or discussed the overall strategy of the CLAHRC programme.All interviews were audio recorded and transcribed.Findings were recorded in fi eldnotes.We used a grounded theory approach that consisted of a process of systematic comparisons across the interview and fi eldnote data to generate, review, and refi ne themes.This approach involved an iterative process of collecting and analysing data by which leads emerging from analysis led to new data collection.
Authors: C Marston, Alicia Renedo
Language: English
Subfield: General Health Professions
Field: Health Professions
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W1955134828