“Cancer Sucks,” and Other Ponderings by Adolescent and Young Adult Cancer Survivors
Year: 2013
Type: article
Study design: Observational Study
Abstract: As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs' perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs' cancer treatment experiences and will inform improvements to oncology care for this population.
Source: Journal of Psychosocial Oncology
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: green
Awards: Surveillance, Epidemiology and End Results (SEER) Program - Iowa, G148522456, G1932976417, RRSS #12 - Patterns of Care - Diagnosis Year 2008 , #14: Residual Tissue Repository to Create HIV Cancer Tumor Tissue Microrarrays , SURVEILLANCE, EPIDEMIOLOGY, AND END RESULTS (SEER) PROGRAM., G2514962408, RRSS#12 - Patterns of Care- Diagnosis Year 2008, G3193254293, G3547570835, G3651850380, G3652080638, G391480630, G420024314, SEER RRSS #4: Cancer in Arab American Estimating Rates and Fostering Research, G6002611130, G702041046, G7278087418, G7507271246, Rapid Response Surveillance Study #09-5 - Constructing Geographic Areas in GIS fo, G8550955980
OpenAlex ID: W1969577545