Work

Challenges in Conducting Qualitative Research with Individuals with Dementia

Year: 2009

Type: article

Abstract: Qualitative research can capture the meaningful experiences and life values of individuals with dementia not reported in quantitative studies. This article shares a personal experience of the challenges faced and the lessons learned while conducting a qualitative study of 15 people with early-stage Alzheimer's disease. The purpose of this article is to discuss the issues concerning determination of capacity to consent to research, consent/assent, communication challenges, and trustworthiness of data when conducting a qualitative study of people with dementia. Understanding communication challenges related to dementia is important to develop effective communication strategies, such as simplifying the structure of questions, allowing ample time for the participant's response, using reminiscence, and redirecting the dialogue. This information will be valuable to researchers conducting qualitative studies and the resulting contributions to the body of knowledge about Alzheimer's disease.

Source: Research in Gerontological Nursing

DOI: 10.3928/19404921-20090101-04

Authors: Linda Beuscher, Victoria T. Grando

Institutions: Vanderbilt University, Arizona State University

Language: English

Topic: Qualitative Research Methods and Ethics

Subfield: Sociology and Political Science

Field: Social Sciences

Domain: Social Sciences

SDG: Good health and well-being

Open Access status: green

Funder: National Institute on Aging