Work

The Contractual Genome: How Direct-to-Consumer Genomic Services may Help Patients Take Ownership of their Dna

Year: 2008

Type: article

Abstract: The sequencing and genotyping of personal genomes by commercial services outside traditional clinical settings may help to shape the expectations of research subjects and patients regarding control of and responsibility for the information contained in their DNA. A greater sense of individual ownership of personal genomic information could replace overly complex and paternalistic institutional proxies for the protection of personal genotype and sequence data, and also could encourage research participants and patients to become better educated regarding genetic contributors to disease.

Source: Personalized Medicine

DOI: 10.2217/17410541.5.4.399

Authors: Morris W Foster, Richard R Sharp

Institutions: University of Oklahoma, Cleveland Clinic

Language: English

Topic: Ethics in Clinical Research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

Funders: National Institutes of Health, National Human Genome Research Institute, National Institute of Environmental Health Sciences