Year: 2014
Type: article
Abstract: research basis.Again, if a genetic explanation is then found and proven, this would then be returned to the research participants, even if long after initial participation.In addition to discoveries that may end the diagnostic odyssey, many genomic endeavors include provisions aimed at managing 'incidental medical information' [Solomon et al., 2012;Green et al., 2013].In this context, incidental medical information includes genomic data that may not be directly relevant to the primary question (what is the reason for the patient's presentation), but that may nonetheless have health implications [Berg et al.,
Source: Molecular Syndromology
DOI: 10.1159/000357929
Author: B.D. Solomon
Institutions: Inova Health System, Inova Children's Hospital
Language: English
Topic: Genomics and Rare Diseases
Subfield: Genetics
Domain: Life Sciences
Open Access status: bronze
OpenAlex ID: W2071704867