Feasibility and first clinical effects of a live self management program for young adolescents with a rheumatic disease
Year: 2011
Type: dissertation
Abstract: Objective: The primary objective of this study is to determine the feasibility of the newly\ndeveloped live self management program, in order to improve and adjust the program if\nnecessary and implement the program in daily practice. Secondary aim is to assess the first\nclinical effects of the ‘live’ self management program in young adolescents which completed\nthe program.\nMethod: Ten young adolescent patients voluntarily took part in the live self management\nprogram and accompanying study. All four peer-leaders took part in the feasibility part of this\nstudy. Data was collected on demographics, feasibility, self efficacy, self management and\nquality of life, at baseline and 10 day follow-up.\nResults: Feasibility of the program was highly agreed on by both young adolescents\nparticipating in the program as by the peer-leaders giving the program. There were\nrecommendations on sports and exercise activities and on the content of the healthy nutrition\ntopic. At follow-up self efficacy had improved with statistical significance (P = 0.024), self\nmanagement showed improvement on several domains, but only emotional well being on a\nstatistical significant level (P = 0.024). In quality of life measurement no significant changes\nwere show on the Dutch HAQ-DI. Diaries on pain, fatigue, global health and disease activity\nshowed improvement, though not significantly.\nConclusion: The live self management program seems to be a suitable intervention for\nyoung adolescents with a rheumatic disease, to work on their self management skills, and\nthus, improving those skills, for beneficial effects on carrying out treatment and daily living, in\naddition to the usual care. Furthermore, the live self management program seems to improve\nself efficacy in young adolescents with a rheumatic disease.
Author: Matthijs Zwier
Institution: University Medical Center Utrecht
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W207629803