Work

The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study

Year: 2014

Type: article

Abstract: Research about the influence of stigma on health outcomes in sickle cell disease is limited. We administered the recently developed Measure of Sickle Cell Stigma to 262 patients in the United States. The Measure of Sickle Cell Stigma yielded very good internal consistency and four interpretable factors. Significant associations among stigma, pain-related healthcare utilization, and perceived disease severity were observed for three of the four stigma factors (F range = 2.78-5.44). The Measure of Sickle Cell Stigma appears to be a useful tool for measuring disease-specific stigma among adults living with sickle cell disease, and further assessment of its clinical utility is warranted.

Source: Journal of Health Psychology

DOI: 10.1177/1359105314539530

Authors: Shawn M Bediako, Sophie Lanzkron, Marie Diener-West, Gladys Onojobi, Mary C Beach, Carlton Haywood

Institutions: University of Maryland, Baltimore County, Johns Hopkins University, Johns Hopkins Medicine, Howard University

Language: English

Topic: Hemoglobinopathies and Related Disorders

Subfield: Genetics

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

Funders: Johns Hopkins University, National Institutes of Health, National Heart, Lung, and Blood Institute, National Institute on Drug Abuse