Factors Associated With Parental Activation in Pediatric Hematopoietic Stem Cell Transplant
Year: 2011
Type: article
Study design: Observational Study
Abstract: Patient activation, the extension of self-efficacy into self-management, is an essential component of effective chronic care. In pediatric populations, caregiver activation is also needed for proper disease management. This study investigates the relationships between parental activation and other characteristics of parent-child dyads (N = 198) presenting for pediatric hematopoietic stem cell transplant. Parental activation concerning their child's health was assessed using the Parent Patient Activation Measure (Parent-PAM), a modified version of the well-validated Patient Activation Measure (PAM). Using hierarchical linear regression and following the Belsky process model for determining parenting behaviors, a multivariate model was created for parental activation on behalf of their child that showed that the parent's age, rating of their own general health, self-activation, and duration of the child's illness were significantly related to Parent-PAM score. Our findings characterize a potentially distinct form of activation in a parent-child cohort preparing for a demanding clinical course.
Source: Medical Care Research and Review
Institutions: Tufts Medical Center, University of North Carolina at Chapel Hill, Cincinnati Children's Hospital Medical Center, Fred Hutch Cancer Center, City Of Hope National Medical Center, Medical College of Wisconsin, Children's Hospital of Philadelphia, University of Pennsylvania, Boston Children's Hospital, Harvard University, Dana-Farber Cancer Institute, University of Oregon
Language: English
Topic: Nursing care and research
Subfield: Pharmacy
Field: Health Professions
Domain: Health Sciences
Open Access status: green
Funder: National Cancer Institute
OpenAlex ID: W2122695653