Work

Seizures and Pain Uncertainty Associated With Parenting Stress and Rett Syndrome

Year: 2013

Type: article

Abstract: Data were collected parenting stress, adaptive behavior, pain, and health issues from the caregivers of 35 girls and women with Rett syndrome (mean age = 20.3). A majority (60%) of parents reported stress in the clinical range on at least 1 subscale of the Parenting Stress Index-Short Form. Seizures and uncertainty about their daughter's gastrointestinal pain experience were significantly associated with higher levels of parenting stress. No other child factors (adaptive behavior, age, residential status) were significantly related to parenting stress. Factors related to chronic health concerns (seizures, ambiguous pain presentation) may be important when considering family stress issues in relation to general outcomes for girls with Rett syndrome and related developmental disorders.

Source: Journal of Child Neurology

DOI: 10.1177/0883073812470736

Authors: Breanne J. Byiers, Raymond C. Tervo, Timothy J. Feyma, Frank J. Symons

Institutions: University of Minnesota, Gillette Children's Specialty Healthcare

Language: English

Topic: Family and Disability Support Research

Subfield: Clinical Psychology

Field: Psychology

Domain: Social Sciences

SDG: Good health and well-being

Open Access status: green

Funders: U.S. Public Health Service, Eunice Kennedy Shriver National Institute of Child Health and Human Development