Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations
Year: 2006
Type: article
Abstract: Advances and declining costs in sequencing technology will result in increasing number of studies with individual sequence data linked to phenotypic information, which has been dubbed medical sequencing. At least some of this linked information will be publicly available. Medical sequencing raises ethical issues for both individuals and populations, including data release and identifiability, adequacy of consent, reporting research results, stereotyping and stigmatization, inclusion and differential benefit and culturally and community-specific concerns. Those issues are reviewed, along with possible solutions to them.
Source: Human Molecular Genetics
DOI: 10.1093/hmg/ddl049
Author: M. W. Foster
Institution: University of Oklahoma
Language: English
Topic: Ethics in Clinical Research
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
Estimated APC paid: $4,390
Awards: University of Oklahoma Community Networks Project OUCNP, AFRICAN AMERICAN COMMUNITY REVIEW OF GENETIC RESEARCH, G1312358893, G2309680161, G2950047864, G3001464395, G3044720652, G3410905510, African-American Haplotype Map Engagement and Follow-up, Indian and Hindu Perspectives on Genetic Variation, Community Consultation as an Ethics Method, G8898622957
OpenAlex ID: W2141598014