Year: 2012
Type: article
Abstract: The article reflects the reasons for the scarcity of patient-inclusive projects in Alzheimer's disease psychosocial research.Among the prejudices concerning research methods the authors identify and examine: 1. the expectation to obtain rich data while involving as little means as possible, 2. the belief that investigating experiences of AD patients poses specific challenges to the researcher and 3. the conviction that the scientist's role is abused by such challenges.The attitude towards involving people with AD in research is also shaped by fear and stigma connected with the disease.The need to apply a metaclinical perspective is suggested. Alzheimer's disease / dementia / research / ethical aspects
Author: Katarzyna Hess-Wiktor
Institution: Jagiellonian University
Language: English
Topic: Ethics in Clinical Research
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W2181751293