Work

The Biomedbridges Ethical Governance Framework

Year: 2014

Type: other

Abstract: This document sets out policies for the BioMedBridges project that specifically relate to ethical and regulatory issues with regard to the storage and access of data. The objective of the BioMedBridges project is to better enable researchers to access data, increasing its utility with the ultimate goal of benefiting society, for example by facilitating new discoveries in health research and by allowing re-analysis of expensive, rare or unrepeatable investigations, while continuing to protect the interests of research participants with regard to their privacy and confidentiality.

Source: Zenodo (CERN European Organization for Nuclear Research)

DOI: 10.5281/zenodo.11952

Authors: Smee, Carol, Bartha Knoppers, Schlünder, Irene, Chadwick, Ruth, Gluud, Christian, Pitkänen, Kimmo, Suhr, Stephanie

Institutions: Wellcome Sanger Institute, Economic and Social Research Council, Cardiff University, Copenhagen University Hospital, Institute for Molecular Medicine Finland, ELIXIR

Language: English

Topic: Ethics in Clinical Research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

Open Access status: green

Funder: European Commission

Award: Building data bridges between biological and medical infrastructures in Europe

OpenAlex ID: W2302507098

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