S&t-04 Psychometric Properties of the Bladder Cancer- Supportive Care Needs Survey Questionnaire (scns-blc).
Year: 2016
Type: article
Study design: Observational Study
Abstract: You have accessJournal of UrologyScience & Technology Posters1 Apr 2016S&T-04 PSYCHOMETRIC PROPERTIES OF THE BLADDER CANCER- SUPPORTIVE CARE NEEDS SURVEY QUESTIONNAIRE (SCNS-BLC). nihal mohamed nihal mohamednihal mohamed More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2016.02.2833AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookTwitterLinked InEmail INTRODUCTION AND OBJECTIVES By 2015, there were 74,000 newly diagnosed bladder cancer (BLC) patients in the United States. Cystectomy and urinary diversion is the standard treatment for patients with muscle invasive bladder cancer (MIBC). These patients experience significant challenges across the disease trajectory that include treatment decision making, coping with treatment side effects, and compliance with follow-up care. To improve the quality of health care, a valid and precise assessment of patients' informational and supportive care needs is essential. The purpose of this study is to test the psychometric properties of a Bladder Cancer Supportive Care Needs Survey (SCNS-BLC). METHODS The SCNS-BLC is a 59-item that assesses patients' perceived type and magnitude of need for information and support in five domains: psychological, health system and information, physical and daily living, sexuality, logistic/practical, and communication needs. On a 5-point Likert scale, patients indicate if they are in need of support and the extent of need (1-no need, not applicable; 2-no need, satisfied; 3-low need; 4-moderate need; 5-high need). The SCNS-BLC was included in a web-based survey that also measured quality of life (EORTC-BLC) and emotional adjustment (HADS) among MIBC survivors. Participants (N =159 MIBC survivors, 49% women) were recruited from a national Bladder Cancer Advocacy Network. Descriptive and multivariate data analyses focused on description of the study sample, psychometric properties of the SCNS-BLC, and prevalence, type, and magnitude of unmet needs, and demographic, clinical and psychosocial predictors of needs. RESULTS The study results revealed strong psychometric structure of the 6 subscales. Cronbach's alpha coefficients are .97, .96, .95, .94, .89, and .92 for the psychological needs, the health system and information needs, the physical and daily living needs, the sexuality needs, the logistic/practical needs, and the communication needs sub-scales, respectively. The internal reliability of the full scale is .99. Consistent with previous research in our sample, most unmet needs were reported on the health system and information and psychological domain. Emotional adjustment and quality of life significantly predicted unmet needs reported controlling for potential covariates (i.e., age, gender, comorbidity; p < .05). CONCLUSIONS Our findings provide evidence for the validity and reliability of the SCNS-BLC scale and revealed strong associations between MIBC patients' unmet needs, quality of life, and emotional adjustment. © 2016FiguresReferencesRelatedDetails Volume 195Issue 4SApril 2016Page: e309-e310 Advertisement Copyright & Permissions© 2016MetricsAuthor Information nihal mohamed More articles by this author Expand All Advertisement Advertisement PDF downloadLoading ...
Source: The Journal of Urology
Author: nihal mohamed
Language: English
Topic: Cancer survivorship and care
Subfield: Oncology
Field: Medicine
Domain: Health Sciences
Open Access status: bronze
OpenAlex ID: W2320557201