Parents of children with arthritis-related diseases: An examination of knowledge of and participation in select support programs and services offered by the Arthritis Foundation
Year: 2016
Type: dissertation
Study design: Observational Study
Abstract: The purpose of this pilot study was to identify the knowledge of and participation in select Arthritis Foundation support programs and services among parents of children with arthritis-related diseases. Parents attending the 2014 Juvenile Arthritis National Conference in Keystone, Colorado completed an online survey that asked about their knowledge of and participation in these programs. The data collected for the study was quantitative and qualitative. Respondents were given the opportunity to add comments to some survey items, and these items were analyzed by grouping them according to common themes. Results indicated that the parents were more knowledgeable about the Juvenile Arthritis National Conference and other fundraisers compared to knowledge of the Advocacy Summit and regional Arthritis Foundation programs. The parents had the highest level of participation in the Juvenile Arthritis National Conference and Walk to Cure Arthritis and the lowest participation in the Advocacy Summit and regional Arthritis Foundation programs. These two programs were the least known among parents. Despite high participation, retention of first-time attendees across all programs was low. This pilot study supports the idea that a study of this nature can be done by the Arthritis Foundation on a larger scale because of the helpful feedback that it can provide to the organization.
Author: Margo Breanna Deihl
Language: English
Subfield: Sociology and Political Science
Field: Social Sciences
Domain: Social Sciences
Open Access status: green
OpenAlex ID: W2340537561