Work

Feasibility of a Community-Based Sickle Cell Trait Testing and Counseling Program.

Year: 2016

Type: article

Abstract: BACKGROUND: Sickle cell trait (SCT) screening is required at birth in the United States; however, adults rarely know their SCT status prior to having children. PURPOSE: Assess feasibility of a community-based SCT education and testing intervention. METHODS: Participants were recruited from eight community sites to complete an educational program and offered a hemoglobin analysis. A genetic counselor met individually with participants to discuss lab results. RESULTS: Between July 14, 2010 and May 31, 2012, 637 participants completed the educational program. Five hundred seventy (89.5%) provided a blood sample, and 61 (10.9%) had SCT or other hemoglobinopathies. The genetic counselor met with 321 (56.3%) participants. CONCLUSIONS: Community-based SCT testing shows initial feasibility and may increase the number of individuals who know their trait status.

Source: PubMed

Authors: Ashley J Housten, Regina A Abel, Terianne Lindsey, Allison A King

Institution: Washington University in St. Louis

Language: English

Topic: Hemoglobinopathies and Related Disorders

Subfield: Genetics

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

Funders: National Institutes of Health, National Cancer Institute

Awards: Washington University Institute of Clinical and Translational Sciences, Washington University Institute of Clinical and Translational Sciences, Postdoctoral Training in Cancer Prevention and Control