Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions
Year: 2014
Type: article
Study design: Observational Study
Abstract: The purpose of this study was to investigate the influence of parental perception of severity of bleeding disorders on parents' quality of life and reproductive decisions.Parents with a child who received care at one of three Hemophilia Treatment Centers in Ohio were invited to complete a questionnaire.Results showed that the majority of participants (n=126) believed their child's bleeding disorder was mild (69.0%) in severity, and that perceived severity differed from the clinical definition of severity.Although initial analyses suggested that perceived severity impacted quality of life, it was not a significant predictor; however, it was found to impact parental burden.Moreover, perceived severity had little impact on reproductive decisions as 71.4% stated that their child's bleeding disorder did not influence reproductive plans.These results suggest that perceived severity may be important in predicting parental burden; however, a combination of factors contributes to quality of life and reproductive decisions.
Author: Erika Tyne Holt
Institution: Case Western Reserve University
Language: English
Subfield: Hematology
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W2667119451