Work

Ethics and Science in the Participatory Era: A Vignette-Based Delphi Study

Year: 2017

Type: article

Abstract: Participatory researchers rely on relationship-based ethical considerations to address ethical challenges, but little is known about how these considerations shape day-to-day decision-making. We presented vignettes describing ethical dilemmas to health researchers with varying degrees of experience in participatory research in an online modified-Delphi panel. Panelists rated potential solutions to dilemmas and provided rationales for choosing solutions in text boxes and discussion boards. Panelists agreed on a preferred solution for three of five vignettes. Panelists indicated that ethical research decision-making should be inclusive of diverse perspectives. Panelists prioritized scientific goals above participatory ones and viewed tenets of scientific validity as value-free. Panelists indicated that participatory research ethics would be difficult to codify, but that vignette-based learning could support didactic objectives.

Source: Journal of Empirical Research on Human Research Ethics

DOI: 10.1177/1556264617717828

Authors: Elizabeth Bromley, Lisa Mikesell, Dmitry Khodyakov

Institutions: University of California, Los Angeles, VA West Los Angeles Medical Center, Rutgers, The State University of New Jersey, RAND Corporation

Language: English

Topic: Ethics in Clinical Research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

Open Access status: green

Funders: University of Pittsburgh, National Institutes of Health, National Institute of Environmental Health Sciences

Award: The Impact of Partnerships with Community on Research Integrity