Work

Stigma of Sickle Cell Disease: A Systematic Review

Year: 2018

Type: review

Abstract: The aim of this systematic review was to synthesize the literature regarding health-related stigma in adolescents and adults living with sickle cell disease (SCD). Four domains were identified from 27 studies: (1) social consequences of stigma; (2) the effect of stigma on psychological well-being; (3) the effect of stigma on physiological well-being; and (4) the impact of stigma on patient-provider relationships and care-seeking behaviors. Current literature revealed that SCD stigma has detrimental consequences. Methodological issues as well as research and practice implications were identified. Future research should further examine the impact of health-related stigma on self-management of SCD.

Source: Issues in Mental Health Nursing

DOI: 10.1080/01612840.2018.1443530

Authors: Dominique Bulgin, Paula Tanabe, Coretta Jenerette

Institutions: Duke University, University of North Carolina at Chapel Hill

Language: English

Topic: Hemoglobinopathies and Related Disorders

Subfield: Genetics

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: green

Funders: National Institutes of Health, National Institute of Nursing Research