Innv-41. My Stori -- a Symptom Tracking and Reporting Instrument Mobile Application for Central Nervous System Cancer Patients
Year: 2018
Type: conference-abstract
Abstract: Managing symptom burden and its impact on the quality of life is an integral part of central nervous system (CNS) cancer patient care. However, keeping track of symptoms and their management is typically done through ad hoc means. Furthermore, reporting is often limited to completing survey instruments as part of the patient follow-up. While general-purpose mobile apps that track medical symptoms exist, they are not geared toward managing and recording the experience of patients with cancer. Cancer-specific apps are emerging but may not cover the entire range of symptoms in patients with CNS cancers. We used two open source frameworks introduced by Apple to enable development of iOS operating system apps for medical research and personal care -- ResearchKit and CareKit -- to develop a mobile app framework for the CNS cancer context. Existing validated symptom reporting instruments, qualitative interviews, and evidence-based symptom management tools were used in the framework. We developed the My STORI mobile app to center on the experience of brain and spine cancer patients: patients and their family members can assess daily symptoms and impact and record any actions that were taken to mitigate them. Summaries of how these measures have evolved over time can be displayed in a series of plots and compiled into reports shareable with the care team. The app is based on research instruments that reflect the knowledge accumulated through years of clinical research in neuro-oncology. Mobile applications have the potential to promote self care, facilitate symptom management, as well as facilitate intuitive, frequent, and convenient collection of invaluable clinical-outcome research data. The My STORI app is an innovation in patient care inspired and guided by years of outcomes research, and tells an important aspect of the story of brain and spine cancer patients.
Source: Neuro-Oncology
Language: English
Subfield: General Health Professions
Field: Health Professions
Domain: Health Sciences
Open Access status: bronze
OpenAlex ID: W2900353435