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Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network

Year: 2019
Type: review
Abstract: The Cancer Research Network (CRN) is a consortium of 12 research groups, each affiliated with a nonprofit integrated health care delivery system, that was first funded in 1998. The overall goal of the CRN is to support and facilitate collaborative cancer research within its component delivery systems. This paper describes the CRN's 20-year experience and evolution. The network combined its members' scientific capabilities and data resources to create an infrastructure that has ultimately supported over 275 projects. Insights about the strengths and limitations of electronic health data for research, approaches to optimizing multidisciplinary collaboration, and the role of a health services research infrastructure to complement traditional clinical trials and large observational datasets are described, along with recommendations for other research consortia.
DOI: 10.5334/egems.273
Authors: V. Paul Doria-Rose, Robert T. Greenlee, Diana S. M. Buist, Diana L. Miglioretti, Douglas A. Corley, Jeffrey S. Brown, Heather A. Clancy, Leah Tuzzio, Lisa M. Moy, Mark C. Hornbrook, Martin L. Brown, Debra P. Ritzwoller, Lawrence H. Kushi, Sarah M. Greene
Institutions: National Institutes of Health, National Cancer Institute, Marshfield Clinic Research Foundation, Marshfield Clinic Research Institute, Kaiser Permanente Washington Health Research Institute, University of California, Davis, Kaiser Permanente, Kaiser Permanente Northern California, Harvard University, Harvard Pilgrim Health Care, Kaiser Permanente Center for Health Research
Language: English
Open Access status: diamond
OpenAlex ID: W2930056132
FWCI: 0.307
Cites: 72
Cited by: 9
Related to: 10