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PaTH to partnership in stakeholder-engaged research: A framework for stakeholder engagement in the PaTH to Health Diabetes study

Year: 2019
Type: article
Abstract: Engaging a diverse stakeholder group, including patients, clinicians, policy makers, and leadership from national professional organizations as partners in research supports the pursuit of patient-centered outcomes. Utilizing the Patient-Centered Outcomes Research (PCOR) Engagement Principles and applying adult learning theories to training opportunities can enhance stakeholder-investigator collaborations. Regularly scheduled study meetings with stakeholders can help streamline communication, offer a platform for stakeholder voices to be shared, and increase study productivity. Ongoing engagement evaluations provide an important opportunity to assess engagement activities and improve processes moving forward. Benefits of a robust patient partner and stakeholder body extend beyond the study's objectives and translate into the creation of larger networks where resources are shared and patient-centeredness is enhanced.
Source: Healthcare
DOI: 10.1016/j.hjdsi.2019.05.001
Authors: Jennifer M. Poger, Hsin-Chieh Yeh, Cindy L. Bryce, Jennifer K. Carroll, Lan Kong, Erica B. Francis, Jennifer L. Kraschnewski
Institutions: Pennsylvania State University, Penn State Milton S. Hershey Medical Center, Johns Hopkins University, Johns Hopkins Medicine, University of Pittsburgh, University of Colorado Denver
Language: English
Open Access status: hybrid
Estimated APC paid: $3,000
OpenAlex ID: W2944947906
FWCI: 2.39
Cites: 16
Cited by: 14
Related to: 10