Work

Ethical Challenges and Lessons Learned from Qualitative Research with Low-Income African American Women Living with HIV in the South

Year: 2019

Type: article

Abstract: African American women living with HIV (WLWH) in the U.S. South encounter heightened marginalization due to the complex intersections of race, gender, poverty, and HIV status. Social vulnerabilities experienced by individuals and communities in daily life have the potential to sharpen ethical tensions in the context of research. Thus, conducting ethical research requires attention to the contextual challenges and concerns of diverse research populations to tailor participant protections to a particular sociocultural context. Using principles from the Belmont Report, the present report draws on data from a qualitative study with 42 African American WLWH in the South by highlighting the first author's accounts of ethical challenges that emerged during data collection. Findings suggest that engaging participants in their natural environments can inform the development of ethical research strategies germane to women's lived experiences. Study findings also contribute to empirical guidance for investigators engaging marginalized populations in scientific research.

Source: Journal of Health Care for the Poor and Underserved

DOI: 10.1353/hpu.2019.0122

Authors: Faith E. Fletcher, Whitney S. Rice, Lucy A. Ingram, Celia B. Fisher

Institutions: Emory University, University of South Carolina, University of Alabama at Birmingham

Language: English

Topic: Qualitative Research Methods and Ethics

Subfield: Sociology and Political Science

Field: Social Sciences

Domain: Social Sciences

SDGs: Reduced inequalities, Gender equality, Good health and well-being, No poverty

Open Access status: green

Funders: Centers for Disease Control and Prevention, National Institute on Drug Abuse, National Cancer Institute