Year: 2019
Type: letter
Abstract: Our genome-wide association study (GWAS) on same-sex sexual behavior, which used data from the UK Biobank (1), was reviewed and approved by the UK Biobank Access Sub-Committee. We also sought stakeholder input from allies and advocates for the LGBTQIA+ community, as has been done in the past (2, 3). Despite these efforts, Holm and Ploug contend that broad biobank consent is insufficient. They argue that our study only tenuously qualifies as “health-related” and thus stretches the bounds of the participants' consent.
Source: Science
Authors: Andrea Ganna, Karin J.H. Verweij, Michel G. Nivard, Robert Maier, Robbee Wedow, Alexander S. Busch, Abdel Abdellaoui, Shengru Guo, J. Fah Sathirapongsasuti, Paul Lichtenstein, Sebastian Lundström, Niklas Långström, Adam Auton, Kathleen Mullan Harris, Gary W. Beecham, Eden R. Martin, Alan R. Sanders, John R.B. Perry, Benjamin M. Neale, Brendan P. Zietsch
Institutions: Broad Institute, Karolinska Institutet, Massachusetts General Hospital, Stanley Center for Psychiatric Research, Amsterdam University Medical Centers, University of Amsterdam, Vrije Universiteit Amsterdam, Harvard University, University of Colorado Boulder, University of Copenhagen, University of Cambridge, Rigshospitalet, MRC Epidemiology Unit, University of Miami, 23andMe (United States), University of Gothenburg, University of North Carolina at Chapel Hill, Endeavor Health, University of Chicago, The University of Queensland
Language: English
Topic: Ethics in Clinical Research
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W2995765451