What lessons it might teach us? Community engagement in HIV research
Year: 2019
Type: review
Abstract: PURPOSE OF REVIEW: Partnerships between academia and the community led to historic advances in HIV and paved the way for ongoing community engagement in research. Three decades later, we review the state of community engagement in HIV research, discuss best practices as supported by literature, explore innovations, and identify ongoing gaps in knowledge. RECENT FINDINGS: The community of people living with and at risk for HIV remains actively involved in the performance of HIV research. However, the extent of participation is highly variable despite long standing and established principles and guidelines of good participatory practices (GPP) and community-based participatory research (CBPR). Current literature reveals that known barriers to successful community engagement continue to exist such as power differences, and poor scientific or cultural competency literacy. Several high-quality studies share their experiences overcoming these barriers and demonstrate the potential of CBPR through reporting of qualitative and quantitative outcomes. SUMMARY: Greater time and attention should be placed on the development of community engagement in HIV research. A large body of literature, including innovative cross-cutting approaches, exists to guide and inform best practices and mitigate common barriers. However, we recognize that true growth and expansion of CBPR within HIV and in other fields will require a greater breadth of research reporting qualitative and quantitative outcomes.
Source: Current Opinion in HIV and AIDS
Authors: Maile Y. Karris, Karine Dubé, Alison A. Moore
Language: English
Subfield: General Health Professions
Field: Health Professions
Domain: Health Sciences
Open Access status: green
Funders: National Institutes of Health, Center for AIDS Research, University of Washington, National Institute on Aging, National Heart, Lung, and Blood Institute, National Institute of Mental Health, National Institute on Drug Abuse, National Cancer Institute, National Institute of General Medical Sciences, National Institute of Allergy and Infectious Diseases, National Institute of Diabetes and Digestive and Kidney Diseases, National Center for Advancing Translational Sciences
Awards: Acceptance and commitment therapy to address the psychosocial co-morbidities of chronic pain in aging people living with HIV, UC San Diego Clinical and Translational Research Institute, San Diego Center for AIDS Research (SD CFAR), Cornell Roybal Center-Translational Research Institute on Pain in Later Life, San Diego Alzheimer's Disease Resource Center for Minority Aging Research (San Diego AD-RCMAR)
OpenAlex ID: W2997998950