Understanding type 1 diabetes self-care management among adolescents and their parents in Jordan : a qualitative study
Year: 2019
Type: dissertation
Abstract: Introduction and Background: Type 1 diabetes is the most common endocrine condition among adolescents.Diabetes self-care management (DSCM) is particularly challenging during adolescence.The perspectives of adolescents with type 1 diabetes and their parents in Jordan have not been studied previously and no qualitative research has been published on adolescents with type 1 diabetes in Jordan.Aim: To understand how adolescents with the diagnosis of type 1 diabetes and their parents manage the condition in the context of Jordanian culture. Methodology: Constructivist grounded theory principles.Methods: 48 participants were recruited using purposive and theoretical sampling techniques including adolescents, parents, and health-care providers were used in 38 semi-structured, audio-recorded interviews.Data were collected and analysed concurrently using different levels of coding, constant comparative analysis, and memo writing.Findings: Adolescents and their parents' descriptions of living with diabetes emphasised their belief that, for them diabetes was a part of God's destiny.They believed they had responsibility for accepting, managing, and integrating diabetes into their lives.Mothers, family members, and others had important roles in DSCM.Adolescents and parents identified individual-level and system-level barriers to DSCM.An example of an individual-level barrier was others' labelling of adolescents for having diabetes, while an example of a system-level barrier was limited insurance coverage including limited access to blood glucose testing strips.Discussion: The findings indicate how culture can influence DSCM among adolescents and their parents in Jordan.Two aspects of culture were identified: collectivism and cultural beliefs.Collectivism included the role others had in adolescents' DSCM.Cultural beliefs included three different sets of beliefs which are: religious beliefs; beliefs about relationships; and beliefs about type 1 diabetes.Conclusion: This study contributes to understanding the perspectives of adolescents with type 1 diabetes and their parents' in Jordan.The findings have implications for their healthcare.
Author: Aaliyah Momani
Language: English
Subfield: Endocrinology, Diabetes and Metabolism
Field: Medicine
Domain: Health Sciences
Open Access status: green
OpenAlex ID: W3094307804