Communication and ethical considerations for fertility preservation for patients with childhood, adolescent, and young adult cancer: recommendations from the PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group
Year: 2021
Type: article
Abstract: Patients with childhood, adolescent, and young adult cancer who will be treated with gonadotoxic therapies are at increased risk for infertility. Many patients and their families desire biological children but effective communication about treatment-related infertility risk and procedures for fertility preservation does not always happen. The PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group reviewed the literature and developed a clinical practice guideline that provides recommendations for ongoing communication methods for fertility preservation for patients who were diagnosed with childhood, adolescent, and young adult cancer at age 25 years or younger and their families. Moreover, the guideline panel formulated considerations of the ethical implications that are associated with these procedures. Grading of Recommendations Assessment, Development and Evaluation methodology was used to grade the evidence and recommendations. In this clinical practice guideline, existing evidence and international expertise are combined to develop transparent recommendations that are easy to use to facilitate ongoing communication between health-care providers and patients with childhood, adolescent, and young adult cancer who might be at high risk for fertility impairment and their families.
Source: The Lancet Oncology
Authors: Renée L Mulder, Anna Font-Gonzalez, Eline van Dulmen-den Broeder, Gwendolyn P Quinn, Jill P Ginsberg, Erik A H Loeffen, Melissa M Hudson, Karen C Burns, Hanneke M van Santen, Claire Berger, Tamara Diesch, Uta Dirksen, Aleksander Giwercman, Clarisa Gracia, Sarah E Hunter, Joanne F Kelvin, James L Klosky, Joop S E Laven, Barbara A Lockart, Sebastian J C M M Neggers, Michelle Peate, Bob Phillips, Damon R Reed, Eva Maria E Tinner, Julianne Byrne, Margreet Veening, Marleen van de Berg, Chris M Verhaak, Antoinette Anazodo, Kenny Rodriguez-Wallberg, Marry M van den Heuvel-Eibrink, Ogechukwu A Asogwa, Alexandra Brownsdon, W Hamish Wallace, Daniel M Green, Roderick Skinner, Riccardo Haupt, Lisa B Kenney, Jennifer Levine, Marianne D van de Wetering, Wim J E Tissing, Norbert W Paul, Leontien C M Kremer, Julia Inthorn, Richard A Anderson, Anke Barnbrock, Joern D Beck, Annelies M E Bos, Gabriele Calaminus, Louis S Constine, Isabelle Demeestere, Christian Denzer, Desiree Grabow, Natascia di Iorgi, Holly R Hoefgen, Kirsi Jahnukainen, Peter Kaatsch, Rejin Kebudi, Cornelis Lambalk, Thorsten Langer, Jacqueline Loonen, Armando Lorenzo, Lillian R Meacham, Andreas Meissner, Rod T Mitchell, Leena Nahata, Andreas Ranft, Marij Dinkelman-Smit, Catharyn Stern, Eveline Stutz-Grunder, Herman Tournaye, Wendy van Dorp, Ans M M van Pelt, Andrica de Vries, Richard Yu
Institutions: Princess Máxima Center, Emma Kinderziekenhuis, Amsterdam University Medical Centers, University of Amsterdam, Vrije Universiteit Amsterdam, New York University, Children's Hospital of Philadelphia, University of Pennsylvania, University Medical Center Groningen, University of Groningen, Beatrix Kinderziekenhuis, St. Jude Children's Research Hospital, Cincinnati Children's Hospital Medical Center, University of Cincinnati, University Medical Center Utrecht, Wilhelmina Children's Hospital, Centre Hospitalier Universitaire de Saint-Étienne, Université Jean Monnet, Université Jean Monnet, University Children’s Hospital Basel, Essen University Hospital, Deutsches Konsortium für Translationale Krebsforschung, Lund University, Memorial Sloan Kettering Cancer Center, Emory University, Children's Healthcare of Atlanta, Erasmus MC, Lurie Children's Hospital, Erasmus MC - Sophia Children’s Hospital, Royal Women's Hospital, The University of Melbourne, University of York, Moffitt Cancer Center, University Hospital of Bern, University Children’s Hospital Bern, Boyne Research Institute, Radboud University Nijmegen, Radboud University Medical Center, UNSW Sydney, Prince of Wales Hospital, Sydney Children's Hospital, Karolinska University Hospital, Karolinska Institutet, University College London Hospitals NHS Foundation Trust, Royal Hospital for Sick Children, Great North Children's Hospital, Newcastle University, Istituto Giannina Gaslini, Boston Children's Hospital, Harvard University, Dana-Farber Cancer Institute, Cornell University, Weill Cornell Medicine, Johannes Gutenberg University Mainz, University Medical Center of the Johannes Gutenberg University Mainz
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
Estimated APC paid: $5,000
OpenAlex ID: W3127095416