Development of an Online Reproductive Health Intervention for Individuals with Sickle Cell Disease or Trait
Year: 2021
Type: article
Abstract: The purpose of this article is to describe the method of developing an internet-based reproductive options intervention to increase informed reproductive decision-making among individuals with sickle cell disease (SCD) or sickle cell trait (SCT). An interprofessional team of graphics and media specialist, nurses, physicians, and researchers collaborated to develop the intervention. Individuals from the community served as advisory board members who reviewed and advised on webpage design, content, delivery, and media. The intervention was theory based, delivered online, and experientially oriented for young adults of reproductive age with SCD or SCT. The intervention was culturally specific, supporting individuals with SCD or SCT in making informed reproductive decisions about transmission of SCD or SCT to their offspring. The intervention could be strengthened to include content on implementing behaviors concordant with informed reproductive decisions. Health care providers can use the result of this study to enhance their knowledge about the complexity of parenting options.
Source: Women s Health Reports
Authors: Versie Johnson-Mallard, Anne Oguntoye, Nyema Eades, Dalal Aldossary, Grace Kuenzli, Miriam O. Ezenwa, Agatha M. Gallo, Diana J. Wilkie
Institutions: University of Florida, University of Illinois Chicago
Language: English
Subfield: Genetics
Field: Medicine
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $1,450
OpenAlex ID: W3165320818