Sibling experiences in families of an individual with a chronic health condition: Down syndrome and cystic fibrosis
Year: 2019
Type: dissertation
Abstract: This document is a manuscript-based thesis, exploring the lived experiences of individuals who \nhave a sibling with a chronic health condition, specifically Down syndrome or cystic fibrosis. \nThe first paper focuses on the experiences of having a sibling with Down syndrome, and the \nsecond on having a sibling with cystic fibrosis. Both studies used a basic interpretive approach, \nand were guided by the Family Adjustment and Adaptation Response (FAAR) Model (Patterson, \n1988; Patterson & Garwick, 1994) to explore the difficulties faced by these siblings and the \nsupports and coping behaviours they employed. The data were collected through interviews and \nanalyzed using Interpretative Phenomenological Analysis (IPA; Eatough & Smith, 2017; Smith, \nFlowers & Larkin, 2009). Results suggested that siblings of those with Down syndrome or cystic \nfibrosis generally view their experiences positively, though they related various difficulties \nincluding taking on various roles, having worries, and the need for more supports for siblings. \nThe results of this study will aid in better understanding the sibling relationship when a brother \nor sister has a chronic health condition, and will inform appropriate supports for siblings and \ntheir families.
Author: Kristina Trandovski
Language: English
Subfield: Clinical Psychology
Field: Psychology
Domain: Social Sciences
Open Access status: green
OpenAlex ID: W3170895253