Work

Using ethnodrama to support parents in sense‐making after prenatal or neonatal diagnosis of a child's disabling condition

Year: 2021

Type: article

Abstract: BACKGROUND/AIMS: This study describes the process of developing video vignettes to meet the parent-expressed need for balanced, meaningful messages about what life may be like for parents who have a child with a disability. Each vignette teaches a general audience salient concepts derived from a grounded theory of the parental process of Rescuing Hope after a child's diagnosis with a developmental disability. METHODS: Using ethnodrama methodology, we completed a secondary analysis of 21 interviews with parents who learned of their child's diagnosis of Down syndrome. RESULTS: Understanding the grounded theory of Rescuing Hope has the potential to help parents construct meaning and purpose as they adapt to parenting a child with a disability. DISCUSSION: The short dramatic vignettes may be placed across platforms, settings and partnerships, with relevance for teachers, clinicians, family members, caregivers. Designed for wide distribution, video vignettes may reach the people who most need sense-making support.

Source: Journal of Applied Research in Intellectual Disabilities

DOI: 10.1111/jar.12945

Authors: Jacqueline Eaton, Sydney Cheek‐O'Donnell, Erin Johnson, Lauren Clark

Institutions: University of Utah, University of California, Los Angeles

Language: English

Topic: Family and Disability Support Research

Subfield: Clinical Psychology

Field: Psychology

Domain: Social Sciences

SDG: Good health and well-being

Open Access status: green

Funders: National Institutes of Health, National Institute on Aging, National Human Genome Research Institute, National Center for Advancing Translational Sciences