Year: 2013
Type: editorial
Abstract: The establishment of an NIH working group managing access to HeLa cell genomic data highlights the limitations of assuring the privacy of participants in genomics studies. If, as this case illustrates, anonymity cannot be guaranteed, informed consent rules may need to be revised.
Source: Nature Medicine
DOI: 10.1038/nm.3342
Language: English
Topic: Ethics in Clinical Research
Field: Medicine
Domain: Health Sciences
Open Access status: hybrid
Estimated APC paid: $12,690
OpenAlex ID: W4231227822