Work

Telehealth and CFTR modulators: Accelerating innovative models of cystic fibrosis care

Year: 2022

Type: review

Abstract: Better health and longer survival for many people with cystic fibrosis (PwCF) compels the continued evolution of the CF care model. Designed to deliver specialized care for a complex chronic condition, the model is organized around interdisciplinary healthcare teams at dedicated care centers. Introduction of CFTR modulators and the COVID-19 pandemic have catalyzed the model's evolution. Many PwCF on modulator therapies are experiencing better health and considering changes in their daily care routines. Some of the growing number of adults with CF are experiencing age-associated co-morbidities, requiring coordination with new specialists. The pandemic accelerated the use of telehealth, revealing tradeoffs from new configurations of care delivery. Herein we review the implications of these recent shifts and offer recommendations to improve the quality of care coordinated across the interdisciplinary teams and an expanding field of subspecialists, while supporting the ability of the patient to take on greater responsibility in disease management.

Source: Journal of Cystic Fibrosis

DOI: 10.1016/j.jcf.2022.07.002

Authors: Michelle H. Prickett, Patrick A. Flume, Kathryn A. Sabadosa, Quynh T. Tran, Bruce C. Marshall

Institutions: Northwestern University, Medical University of South Carolina, Cystic Fibrosis Foundation

Language: English

Topic: Cystic Fibrosis Research Advances

Subfield: Pulmonary and Respiratory Medicine

Field: Medicine

Domain: Health Sciences

SDG: Good health and well-being

Open Access status: hybrid

Estimated APC paid: $3,700