Development and evaluation of the patient-reported outcomes measurement information system (PROMIS) pediatric pain quality item bank and short form
Year: 2022
Type: article
Abstract: ABSTRACT: Pain is a common problem among children, particularly those with pediatric chronic diseases. Multifaceted assessment of pain can improve communication about pain and help clinicians characterize, differentiate, and treat a patient's unique experience of pain. Pain quality is an important domain of pain, describing the subjective sensory experiences associated with pain as well as the affective experiences of pain. The aim of the current study was to quantitatively evaluate the measurement properties of the 59 Patient-Reported Outcomes Measurement Information System pediatric pain quality candidate items developed as part of the National Institutes of Health's Patient-Reported Outcomes Measurement Information System initiative with input from children and adolescents with chronic pain. Participants included N = 448 pediatric patients between 8 and 18 years of age with chronic health conditions with a prominent component of chronic or recurrent pain, including juvenile fibromyalgia, juvenile idiopathic arthritis, and sickle cell disease. A confirmatory factor analysis revealed a unidimensional model fit the data best, with 56 of the 59 items demonstrating good psychometric properties for inclusion in the final measure. In addition, a consensus-building method was used to establish 2 versions of a short form measure-one with 8 items focused primarily on the sensory pain qualities and one with 8 items focused on affective pain qualities. The final measure shows good reliability and validity, and is recommended for use in research and clinical care with pediatric populations.
Source: Pain
Language: English
Field: Medicine
Domain: Health Sciences
Open Access status: green
Awards: UW Center on Outcomes Research in Rehabilitation(RMI), Pediatric PROMIS: Advancing the Measurement and Conceptualizaiton of Child Health, Development and Validation of a Self-Efficacy Item Bank, Validating and Extending the PROMIS Sexual Function Measure for Clinical Research, G511022183, Development and Initial Validation of PROMIS GI Distress Scale, PROMIS Technical Center, PROS (Patient Reported Outcomes) for Children and Young Adults with Disabilities, Improving Assessment of Physical Function and Drug Safety in Health and Disease, Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research, Validation and domain development in mental health and sleep-wake function, PROMIS Pediatrics: Longitudinal Validation and Linking Pediatric and Adult Item B, Validation of PROMIS in Diverse Cancer Populations, Patient reported outcomes in routine clinical care of patients infected with HIV, Ecological Validity of PROMIS Instruments, Patient-Reported Outcomes Measurement Information System (PROMIS) Network Center, PROMIS Statistical Center
OpenAlex ID: W4289529722
