Work

Quality of life beyond diagnosis in intellectual disability – Latent profiling

Year: 2022

Type: article

Study design: Observational Study

Source: Research in Developmental Disabilities

DOI: 10.1016/j.ridd.2022.104322

Authors: Helen Leonard, Andrew Whitehouse, Peter Jacoby, Tim Benke, Scott Demarest, Jacinta Saldaris, Kingsley Wong, Dinah Reddihough, Katrina Williams, Jenny Downs

Institutions: The Kids Research Institute Australia, The University of Western Australia, Children's Hospital Colorado, University of Colorado Anschutz, Royal Children's Hospital, The University of Melbourne, Murdoch Children's Research Institute, Monash Children’s Hospital, Monash Health, Monash University, Curtin University

Language: English

Topic: Down syndrome and intellectual disability research

Subfield: Public Health, Environmental and Occupational Health

Field: Medicine

Domain: Health Sciences

SDGs: Good health and well-being, Reduced inequalities

Open Access status: bronze

Funders: U.S. Department of Health and Human Services, Rett Syndrome Association of Australia, Austin Peay State University, Department of Health, State Government of Victoria, State Government of Victoria, International Foundation for CDKL5 Research, Medical Research Council, National Health and Medical Research Council, National Institute of Neurological Disorders and Stroke

Awards: Characterising quality of life and its determinants for children with intellectual disability and their families, Multi-Site Validation of Biomarkers and Core Clinical Outcome Measures for Clinical Trials Readiness in CDKL5 Deficiency Disorder

OpenAlex ID: W4289913868

FWCI: 4.859

Cites: 49

Cited by: 29

Related to: 10