Year: 2022
Type: article
Abstract: WHAT IS ALREADY KNOWN ABOUT THIS TOPIC?: Epidermolysis bullosa (EB) causes blistering and scarring of the hands resulting in contractures fused web spaces and altered function. Surgery is needed to release contractures and web spaces and hand therapy is essential to maintain results, approaches for both differ. WHAT DOES THIS STUDY ADD?: These guidelines aim to provide information on the surgical and conservative therapeutic hand management of children and adults diagnosed with EB. They are based on available evidence and expert consensus to assist hand surgeons and therapists in decision making, planning and treatment. They highlight the importance of a holistic multidisciplinary team (MDT) approach, where patient priorities are paramount.
Institutions: Guy's and St Thomas' NHS Foundation Trust, Nikiforov Russian Center of Emergency and Radiation Medicine, Great Ormond Street Hospital, Great Ormond Street Hospital for Children NHS Foundation Trust, University of Minnesota, Fairview Health Services, Cincinnati Children's Hospital Medical Center
Language: English
Subfield: Cell Biology
Domain: Life Sciences
Open Access status: gold
Estimated APC paid: $2,680
OpenAlex ID: W4308381002