Work

P114: Use of population data to empower patient organizations and improve advocacy for rare disease therapeutics

Year: 2023

Type: article

Source: Genetics in Medicine Open

DOI: 10.1016/j.gimo.2023.100143

Authors: Samantha Baxter, Moriel Singer-Berk, Kathryn Russell, Emily Groopman, Nicholas Watts, Michael Wilson, Jordan Wood, Heidi Rehm, Anne O'Donnell-Luria

Institutions: Broad Institute, Massachusetts General Hospital, Boston Children's Hospital

Language: English

Topic: Genomics and Rare Diseases

Subfield: Genetics

Field: Biochemistry, Genetics and Molecular Biology

Domain: Life Sciences

SDG: Good health and well-being

Open Access status: gold

Estimated APC paid: $3,200

OpenAlex ID: W4324117124

FWCI:

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