Initial Evaluation of the Pediatric PROMIS® Health Domains in Children and Adolescents With Sickle Cell Disease: Pediatric PROMIS in SCD
Year: 2020
Type: article
Abstract: The Patient Reported Outcomes Measurement Information System (PROMIS®) has developed pediatric self-report scales measuring several unidimensional health attributes (domains) suitable for use in clinical research, but these measures have not yet been validated in sickle cell disease (SCD).
DOI: 10.17615/249v-9427
Institution: University of North Carolina at Chapel Hill
Language: English
Subfield: Genetics
Field: Medicine
Domain: Health Sciences
Open Access status: green
Funders: Children's Hospital of Philadelphia, Northwestern University, University of Washington, University of Pittsburgh, Georgetown University, National Institutes of Health, University of California, Los Angeles, University of North Carolina at Chapel Hill, National Institute of Arthritis and Musculoskeletal and Skin Diseases, Common Fund
Awards: UW Center on Outcomes Research in Rehabilitation(RMI), Pediatric PROMIS: Advancing the Measurement and Conceptualizaiton of Child Health, G2312838238, Development and Validation of a Self-Efficacy Item Bank, G4629511624, Validating and Extending the PROMIS Sexual Function Measure for Clinical Research, G467354576, Development and Initial Validation of PROMIS GI Distress Scale, PROMIS Technical Center, PROS (Patient Reported Outcomes) for Children and Young Adults with Disabilities, G6511419719, Ecological validity in patient-reported chronic disease outcomes(RMI), Improving Assessment of Physical Function and Drug Safety in Health and Disease, G6830853994, G760081844, Validation and domain development in mental health and sleep-wake function, NIH PROMIS Statistical Coordinating Center(RMI), PROMIS Pediatrics: Longitudinal Validation and Linking Pediatric and Adult Item B, Validation of PROMIS in Diverse Cancer Populations, Patient reported outcomes in routine clinical care of patients infected with HIV, Ecological Validity of PROMIS Instruments, Patient-Reported Outcomes Measurement Information System (PROMIS) Network Center, G8557350662, G8657568591, PROMIS Statistical Center, G9000120015, G924139574, G964409963
OpenAlex ID: W4376150798