Year: 2023
Type: article
Abstract: This article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.
Authors: W Van Staden, A Nienaber, T Rossouw, A Turner, C Filmalter, A E Mercier, J G Nel, B Bapela, M M Beetge, R Blumenthal, C D V Castelyn, T W De Witt, A G Dlagnekova, C Kotze, J S Mangwane, L Napoles, R Sommers, L Sykes, W B Van Zyl, M Venter, A Uys, N Warren
Institution: University of Pretoria
Language: English
Topic: Race, Genetics, and Society
Subfield: Genetics
Domain: Life Sciences
Open Access status: gold
Estimated APC paid: $296
OpenAlex ID: W4382193095