Work

Impact of tardive dyskinesia on patients and caregivers: a survey of caregivers in the United States

Year: 2023

Type: article

Abstract: BACKGROUND: Tardive dyskinesia (TD) has a multidimensional impact on patients with TD and, as importantly, their caregivers. An online survey was developed and administered to assess patient and caregiver burden of TD. Survey participants were unpaid caregivers for patients with diagnoses of TD and schizophrenia, bipolar disorder, and/or major depressive disorder. Overall, 162 caregivers rated the 7-day impact of TD on the physical, psychological, and social functioning of patients and the impact of TD on these domains in their own lives and in their professional lives. RESULTS: Across physical, psychological, and social domains, most caregivers (82.7%) reported that TD had severe impact on the cared-for patients, and 23.5% reported severe impact of TD in their own lives. Caregivers experienced 46.4% activity impairment, and caregivers who were employed (n = 136) experienced 49.5% overall work impairment because of TD-related caregiving. CONCLUSIONS: These results suggest that TD imposes substantial burden for both caregivers and patients.

Source: Journal of Patient-Reported Outcomes

DOI: 10.1186/s41687-023-00658-9

Authors: Rakesh Jain, Rajeev Ayyagari, Debbie Goldschmidt, Mo Zhou, Stacy Finkbeiner, Sam Leo

Institutions: Texas Tech University, Analysis Group (United States), Teva Pharmaceuticals (United States)

Language: English

Topic: Family Caregiving in Mental Illness

Subfield: Clinical Psychology

Field: Psychology

Domain: Social Sciences

SDG: Good health and well-being

Open Access status: gold

Estimated APC paid: $1,790