Year: 2013
Type: article
Study design: Observational Study
Abstract: This paper aims to discuss the daily life of Informal Caregivers (ICG) of cancer patients assisted in an outpatient chemotherapy unit of a university hospital in Campinas, São Paulo state.This study is part of a broader investigation.It was approved by a Research Ethics Committee under protocol n. 0288/10, and all ethical principles were adopted in accordance with the recommendations of Resolution 196/96.It is a descriptive, quantitative and qualitative study with literature and field research.Semi-structured interviews were conducted with 14 ICGs for data collection.The data were analyzed based on the goals of the study and the theory and practice pertaining to the Theory of Social Representation.The results showed that (92.8%) of the ICGs are female (57.1%), married, between 41 and 60 years old (78.5%), living in the same household of the sickened family members at the following degrees of relatedness: (35.7%) mother-daughter, followed by (21.4%) husband-wife.In the Informal Caregivers' perception, their role interfered with their daily activities, bringing restrictions to leisure activities, self-care and work.The study expanded the understanding of the impacts that the function of caring brings to their everyday activities, helping to foster discussions about the need to implement actions and interventions of occupational therapy strategies that facilitate the daily lives of ICGs.
DOI: 10.4322/cto.2013.011
Language: Portuguese
Topic: Nursing care and research
Subfield: Research and Theory
Field: Nursing
Domain: Health Sciences
Open Access status: gold
Estimated APC paid: $66
OpenAlex ID: W2333759154